Autoimmune Blistering Diseases

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Autoimmune Blistering Diseases

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Autoimmune Blistering Diseases is not the name you expected.

Disorder Subdivisions

  • Epidermolysis Bullosa Acquista
  • IgA-Mediated Bullous Dermatoses
  • Pemphigoid
  • Pemphigus

General Discussion

Autoimmune blistering diseases are a group of disorders in which the body mistakenly attacks healthy tissue, causing blistering lesions that primarily affect the skin and mucous and membranes. In autoimmune blistering diseases, antibodies mistakenly attack proteins that are essential for the layers of skin to stick (adhere) together. The specific symptoms and severity of blistering diseases vary from one person to another, even among individuals with the same disorder. In some cases, blistering lesions can cover a significant portion of the skin. Although there is no cure for autoimmune blistering diseases, they can often be controlled with treatment. In other cases, autoimmune blistering diseases if left untreated can eventually cause life-threatening complications. In recent years, new insight into the causes and development of these disorders has led to research into new therapies such as the development of drugs that target the specific antibodies which cause the symptoms of these diseases. NORD has individual reports on many of the specific disorders classified as autoimmune blistering diseases. For more information, choose the specific disease name as your search term in the Rare Disease Database.

Resources

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Ave.
East Detroit, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

NIH/NationaI Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/

International Pemphigus & Pemphigoid Foundation
2701 Cottage Way
Suite 16
Sacramento, CA 95825
USA
Tel: (916)922-1298
Fax: (916)922-1458
Email: pemphigus@pemphigus.org
Internet: http://www.pemphigus.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Internet: http://rarediseases.info.nih.gov/GARD

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Fax: (732)543-7285
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

AutoImmunity Community
Tel: (919) 552-9057
Email: moderator@autoimmunitycommunity.org
Internet: http://www.autoimmunitycommunity.org

Australasian Blistering Diseases Foundation
St. George Hospital,
Department of Dermatology
Gray Street
Kogarah
Sydney, NSW 2217
Australia
Tel: 02 9113 2088
Fax: 02 9113 2886
Email: info@blisters.org.au
Internet: http://www.blisters.org.au/BDHome.html

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  11/3/2008
Copyright  2008 National Organization for Rare Disorders, Inc.

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information.