It is possible that the main title of the report Jervell and Lange-Nielsen Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Jervell and Lange-Nielsen syndrome is a rare inherited disorder characterized by deafness present at birth (congenital) occurring in association with abnormalities affecting the electrical system of the heart. The severity of cardiac symptoms associated with Jervell and Lange-Nielsen syndrome varies from case to case. Some individuals may have no apparent symptoms (asymptomatic); others may develop abnormally increased heartbeats (tachyarrhythmias) resulting in episodes of unconsciousness (syncope), cardiac arrest, and potentially sudden death. Physical activity, excitement or stress may trigger the onset of these symptoms. Jervell and Lange-Nielsen syndrome is usually detected during early childhood and is inherited as an autosomal recessive trait.
International Long QT Syndrome Registry
Heart Research Follow-up Program
University of Rochester Medical Center
Rochester, NY 14642-8653
Deafness Research Foundation
363 Seventh Avenue,10th Floor
New York, NY 10016-3904
American Heart Association
8200 Brookriver Drive
Dallas, TX 75247
Sudden Arrhythmia Death Syndromes Foundation
508 E. South Temple
Salt Lake City, UT 84102
NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Cardiac Arrhythmias Research and Education Foundation, Inc. (C.A.R.E)
427 Fulton Street
P.O. Box 69
Seymour, WI 54165
Nidau, Intl 2560
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
PO Box 241956
Los Angeles, CA 90024
American Academy of Audiology
11730 Plaza America Drive, Suite 300
Reston, VA 20190
Fetal Hope Foundation
9786 S Holland Street
Littleton, CO 80127
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It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
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Last Updated: 5/5/2008
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