Raynaud's Disease and Phenomenon

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Raynaud's Disease and Phenomenon

National Organization for Rare Disorders, Inc.

It is possible that the main title of the report Raynaud's Disease and Phenomenon is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.


  • Primary Raynaud's Disease
  • PRP
  • Symmetric Asphyxia

Disorder Subdivisions

  • None

General Discussion

Raynaud's disease is a common vascular disorder characterized by episodes of constriction of very small arteries (arteriole vasospasm) in the fingers and skin usually in response to cold temperatures or stress. Symptoms in the fingers include unusual paleness, absence of color (pallor), and/or a red or bluish color to the skin (cyanosis). Occasionally other parts of the body are affected including the nose, ears, and/or tongue. Raynaud's disease is a common benign condition and does not usually occur in association with any other underlying disorder. This form of the disorder may be referred to as primary Raynaud's disease.

A secondary form of the disease, known as Raynaud's phenomenon, affects a small number of individuals. This form of the disorder is usually found in association with another underlying systemic disorder.


American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Ave.
East Detroit, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

American Heart Association
8200 Brookriver Drive
Suite N-100
Dallas, TX 75247
Tel: (214)784-7212
Fax: (214)784-1307
Tel: (800)242-8721
Email: Review.personal.info@heart.org
Internet: http://www.americanheart.org

NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov
Internet: http://www.nhlbi.nih.gov/

Raynaud's & Scleroderma Association (UK)
112 Crewe Road
Cheshire, Intl ST7 2JA
United Kingdom
Tel: 44 (0) 1270 872776
Fax: 44 (0) 1270 883556
Tel: 0800 9172494
Email: info@raynauds.org.uk
Internet: http://www.raynauds.org.uk

Raynaud's Association, Inc.
94 Mercer Avenue
Hartsdale, NY 10530
Tel: (800)280-8055
Fax: (914)946-4685
Tel: (800)280-8055
Email: info@raynauds.org
Internet: http://www.raynauds.org

Vascular Disease Foundation
1075 S. Yukon Street
Suite 320
Lakewood, CO 80226
Tel: (303)989-0500
Fax: (303)989-0200
Tel: (888)833-4463
Email: info@vdf.org
Internet: http://www.vdf.org

P.O. Box 9204
Bardonia, NY 10954
Tel: (845)548-0313
Fax: (845)792-0880
Email: cf_alliance@yahoo.com
Internet: http://www.cf-alliance.tripod.com/

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Internet: http://rarediseases.info.nih.gov/GARD

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Fax: (732)543-7285
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435-4702
Tel: (952)583-5735
Tel: (800)564-7099
Email: isn@sclero.org
Internet: http://www.sclero.org

European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Tel: +31 73-6992965
Fax: +41 22 906 91 40
Email: esid@kenes.com
Internet: http://www.esid.org

Cold Agglutinin Disease E-Support
c/o Betty Usdan
146 Greens Rd.
Hollywood, FL 33021
Tel: (954)961-2703
Fax: (954)961-2703
Email: kolbysmum@aol.com
Internet: http://www.coldagglutinindisease.org

AutoImmunity Community
Tel: (919) 552-9057
Email: moderator@autoimmunitycommunity.org
Internet: http://www.autoimmunitycommunity.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/5/2008
Copyright  1986, 1987, 1988, 1990, 1994, 1996, 1997, 1999, 2006 National Organization for Rare Disorders, Inc.

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