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A Mother’s Early Death Drives Her Daughter To Find A Treatment

 

Kamni Vallabh helps her daughter Sonia get ready for her wedding, a few months before Kamni started showing symptoms of the prion disease that would kill her.

Courtesy of Sonia Vallabh


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Courtesy of Sonia Vallabh

Kamni Vallabh helps her daughter Sonia get ready for her wedding, a few months before Kamni started showing symptoms of the prion disease that would kill her.

Courtesy of Sonia Vallabh

Sonia Vallabh saw her mother die at age 52 from a rare disease that causes irreversible brain damage. Then Sonia learned she has inherited the genetic mutation that killed her mother. She and her husband quit their jobs and trained to become scientists. They’re now racing against time to come up with a treatment that could save Sonia’s life.

Listen to Part I of Sonia’s story on Morning Edition, and Part II later today on All Things Considered.

 

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