\n ![\"Scarlett](\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/18\/10\/3C3AF25600000578-0-Scarlett_Wright_is_one_of_only_160_people_in_the_world_born_with-m-13_1484736844290.jpg\")
<\/p>\n
Scarlett Wright is one of only 160 people in the world born with Adams-Oliver syndrome – a condition that means her hands and feet will never grow<\/p>\n
Mrs Barlow, Scarletts’ full-time carer, who lives in Talke, Staffordshire, said: ‘We can’t believe how she’s taken to it.<\/p>\n
‘She is so lovely and outgoing and won’t let anything stop her, but she has to be so brave to do ballet.<\/p>\n
‘We went to a wax works in September last year and when she saw Darcey Bussell she was in awe.<\/p>\n
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\n <\/a>\n <\/li>\n<\/ul>\n‘She kept asking about her, and when I explained she was a ballet dancer Scarlett watched all the videos of her performing.<\/p>\n
‘As she watched them she started dancing in her room, and begged us to let her go to dance classes.’<\/p>\n
Unfortunately, the first two dance classes the family came across warned the moves would likely be too complex for Scarlett.<\/p>\n
\n![\"The](\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/18\/11\/3C3AF0CE00000578-0-image-a-14_1484737960329.jpg\")
<\/p>\nThe syndrome, which occurs when bones don’t fuse at birth, left the toddler missing her toes and a finger on her right hand<\/p>\n
\n![\"Despite](\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/18\/11\/3C3AF21200000578-4131724-image-a-22_1484738665377.jpg\")
<\/p>\nDespite only being able to walk in personalised shoes specially moulded to her feet, she has been attending ballet lessons bare foot<\/p>\n
\n![\"She](\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/18\/11\/37D7BFB700000578-4131724-image-a-23_1484738763836.jpg\")
<\/p>\nShe became obsessed with dancing after seeing a wax work of ballerina and Strictly Come Dancing judge Darcey Bussell (pictured) last year<\/p>\n
However, they eventually found a dance teacher who agreed to take her on, and Mrs Barlow says she has ‘fitted in so well’.<\/p>\n
‘We are over the moon that someone has helped make her little dreams come true which is why we are fund-raising for the troupe,’ she added.\u00a0<\/p>\n
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WHAT IS AOS?<\/h3>\n
Since the first case in 1945, there have only been a further 130 recorded in medical literature.<\/p>\n
It is characterised by a combination of defects – mainly in the formation of the scalp and the skull.<\/p>\n
But it can also cause abnormalities in limb development, such as missing toes and fingers.<\/p>\n
Scientists are unsure as to the exact cause of the syndrome, but believe it could be to do with a defect in the vascular development.<\/p>\n
Treatment is designed to address the symptoms, and is often dependent on the severity of the syndrome.<\/p>\n
Skin defects can often be left to heal, but surgery could be required to manage larger abnormalities.\u00a0<\/p>\n
Source: Contact A Family<\/a>\u00a0<\/p>\n
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The NHS can only provide one pair of shoes to Scarlett, who also has a heart murmur, that are specially fitted – her school shoes.<\/p>\n
But she needs one pair of shoes for performing and another for training, which each cost over \u00a3100.<\/p>\n
Because the condition causes her pain, she is unable to dance for very long.<\/p>\n
However, due to her love for ballet, she is willing to put up with the discomfort, Mrs Barlow added.\u00a0<\/p>\n
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‘It’s her birthday on Monday and it would be incredible if she could have the dance shoes by then,’ she said.<\/p>\n
‘She’s really struggling with a lot of things but she just gets on with it even though she’s in agony with her feet by the end of the day.<\/p>\n
‘As a mother, it’s difficult to watch. No-one wants their child to have a disability, but it makes it easier because she’s so positive. If it wasn’t for that, I don’t know if I could cope.\u00a0<\/p>\n
‘There’s no-one who doesn’t fall in love with her, she’s just got one of those faces.’<\/p>\n
Owner of Lil Gems, the class that Scarlett now attends, Anne Donaldson, 69, said: ‘I think everybody should have a chance.\u00a0<\/p>\n
‘Scarlett is a lovely little girl. She’s beautiful and she just fitted in.<\/p>\n
‘She loves it and even tries to keep up with the older ones. For all she goes through in life, she is lovely and she’s part of our team.’\u00a0<\/p>\n
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A four-year-old girl born without any toes is trying to fulfil her dream of becoming a dancer. Scarlett Wright is one of only 130 people in the world born with Adams-Oliver syndrome (AOS) – a condition that means her hands and feet will never grow. Occurring when bones don’t fuse at birth, it also left Read More<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[],"tags":[],"class_list":["post-147011","post","type-post","status-publish","format-standard","hentry"],"_links":{"self":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts\/147011","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/comments?post=147011"}],"version-history":[{"count":0,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts\/147011\/revisions"}],"wp:attachment":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/media?parent=147011"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/categories?post=147011"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/tags?post=147011"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}