{"id":147461,"date":"2017-01-19T18:53:43","date_gmt":"2017-01-19T18:53:43","guid":{"rendered":"http:\/\/healthmedicinet.com\/i\/wigan-man-turned-stiff-from-ultra-rare-condition-fop-dies\/"},"modified":"2017-01-19T18:53:43","modified_gmt":"2017-01-19T18:53:43","slug":"wigan-man-turned-stiff-from-ultra-rare-condition-fop-dies","status":"publish","type":"post","link":"http:\/\/healthmedicinet.com\/i\/wigan-man-turned-stiff-from-ultra-rare-condition-fop-dies\/","title":{"rendered":"Wigan man turned stiff from ultra rare condition FOP dies"},"content":{"rendered":"<ul class=\"mol-bullets-with-font\">\n<li class=\"\"><strong>Adrian Berry, from Wigan, suffered with fibrodysplasia ossificans progressiva<\/strong><\/li>\n<li class=\"\"><strong>The condition is believed to affect just 3,500 people worldwide, reports suggest<\/strong><\/li>\n<li class=\"\"><b>He had already managed to live for more than double his predicted lifespan<\/b><\/li>\n<li class=\"\"><strong>But the accountant contracted pneumonia and passed away on Boxing Day<\/strong><\/li>\n<\/ul>\n<p class=\"author-section byline-plain\">By<\/p>\n<p>Stephen Matthews For Mailonline<\/a><\/p>\n<p class=\"byline-section\"><span class=\"article-timestamp article-timestamp-published\"><br \/>\n  <span class=\"article-timestamp-label\">Published:<\/span><br \/>\n  12:03 EST, 19 January 2017<br \/>\n<\/span><br \/>\n | <span class=\"article-timestamp article-timestamp-updated\"><br \/>\n  <span class=\"article-timestamp-label\">Updated:<\/span><br \/>\n  13:16 EST, 19 January 2017<br \/>\n<\/span>\n<\/p>\n<\/p>\n<ul>\n<li class=\"share-facebook\"><\/li>\n<li class=\"share-twitter\"><\/li>\n<li class=\"share-pinterest\"><\/li>\n<li class=\"share-gplus\">\n      <span class=\"g-interactivepost\"><br \/>\n        <a><\/a><br \/>\n      <\/span>\n        <\/li>\n<li class=\"share-email\">\n<p>                <span class=\"wai\">e-mail<\/span><br \/>\n            <\/a>\n        <\/li>\n<li class=\"share-icons\" id=\"shareLinkTop\">\n            <\/a>\n            <\/li>\n<\/ul>\n<p> <span><\/span><\/p>\n<p class=\"count-number\">           1<\/p>\n<p class=\"count-text\">View <br \/> comments<\/p>\n<p>    <\/a><\/p>\n<p class=\"mol-para-with-font\">\n<p class=\"mol-para-with-font\">A man has died following a life-long battle with an ultra rare condition which eventually turned him stiff.<\/p>\n<p class=\"mol-para-with-font\">Adrian Berry, 40, suffered from fibrodysplasia ossificans progressiva (FOP) &#8211; that causes bone to form inside muscle, ligaments and tendons.<\/p>\n<p class=\"mol-para-with-font\">But the accountant managed to live for more than double his predicted life expectancy after he passed away with pneumonia on Boxing Day.\u00a0<\/p>\n<p class=\"mol-para-with-font\">\n<p class=\"mol-para-with-font\">However, his family say the disease, which is believed to affect just 3,500 people worldwide, never stopped him from living life to the full.<\/p>\n<p class=\"mol-para-with-font\">They even claim that he developed his own style of cross-legged walk to get around in his twilight years.<\/p>\n<p>    <img loading=\"lazy\" decoding=\"async\" id=\"i-f5f4de6ee8bd6b9\" src=\"image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" height=\"830\" width=\"634\" alt=\"Adrian Berry, 40, suffered from a condition that causes bone to form inside muscle, ligaments and tendons (pictured at home with his friends on his 40th birthday last June)\" class=\"blkBorder img-share\" \/><br \/>\n      <img loading=\"lazy\" decoding=\"async\" id=\"i-f5f4de6ee8bd6b9\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/19\/16\/3C45D57400000578-0-Adrian_Berry_40_suffered_from_fibrodysplasia_ossificans_progress-a-91_1484844109699.jpg\" height=\"830\" width=\"634\" alt=\"Adrian Berry, 40, suffered from a condition that causes bone to form inside muscle, ligaments and tendons (pictured at home with his friends on his 40th birthday last June)\" class=\"blkBorder img-share\" \/><\/p>\n<p class=\"imageCaption\">Adrian Berry, 40, suffered from a condition that causes bone to form inside muscle, ligaments and tendons (pictured at home with his friends on his 40th birthday last June)<\/p>\n<p class=\"mol-para-with-font\">Mourners ironically gathered outside a church near his home in Wigan to &#8216;stand still for the man who stood still&#8217;.<\/p>\n<p class=\"mol-para-with-font\">His brother Anthony said: &#8216;He never let his &#8220;lessability&#8221; &#8211; as we all liked to call it &#8211; get in the way of what he wanted to do.<\/p>\n<ul class=\"rotator-panels link-bogr1 linkro-ccox\">\n<li>\n<p>          <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/19\/16\/3C49EC9300000578-0-image-a-7_1484843647786.jpg\" width=\"62\" height=\"60\" \/><span>Almost 50% of U.S. men have HPV, figures reveal &#8211; but just&#8230;<\/span><br \/>\n        <\/a><\/p>\n<p>          <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/19\/15\/3C48C69C00000578-0-image-a-81_1484838631087.jpg\" width=\"62\" height=\"60\" \/><span>Teaching your child Mandarin could help them to play an&#8230;<\/span><br \/>\n        <\/a><\/p>\n<p>          <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/19\/14\/3C48E1AF00000578-0-image-m-18_1484837553244.jpg\" width=\"62\" height=\"60\" \/><span>Former NHS director of mental health reveals how she was&#8230;<\/span><br \/>\n        <\/a><\/p>\n<p>          <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/19\/00\/3C420E3D00000578-0-image-m-31_1484786640772.jpg\" width=\"62\" height=\"60\" \/><span>Pay people to work out, top medic tells health officials:&#8230;<\/span><br \/>\n        <\/a>\n      <\/li>\n<\/ul>\n<p class=\"mol-para-with-font\">&#8216;He made the best of a bad lot &#8211; Adrian&#8217;s glass was always half full, he always had loads of friends and family round and he enjoyed his fishing and his computer games.<\/p>\n<p class=\"mol-para-with-font\">&#8216;He was treated as one of the lads &#8211; he got no special treatment and his eyebrows were as fair game as anyone else&#8217;s.&#8217;<\/p>\n<p>    <img loading=\"lazy\" decoding=\"async\" id=\"i-6de9f80f56b65725\" src=\"image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" height=\"670\" width=\"634\" alt=\"But the accountant passed away with pneumonia on Boxing Day (pictured as a schoolboy)\" class=\"blkBorder img-share\" \/><br \/>\n      <img loading=\"lazy\" decoding=\"async\" id=\"i-6de9f80f56b65725\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/19\/16\/3C45D32700000578-0-But_the_accountant_passed_away_with_pneumonia_on_Boxing_Day_pict-m-92_1484844182198.jpg\" height=\"670\" width=\"634\" alt=\"But the accountant passed away with pneumonia on Boxing Day (pictured as a schoolboy)\" class=\"blkBorder img-share\" \/><\/p>\n<p class=\"imageCaption\">But the accountant passed away with pneumonia on Boxing Day (pictured as a schoolboy)<\/p>\n<p class=\"mol-para-with-font\">Mr Berry was diagnosed with FOP when he was just 18 months old from the gradual malformation of his big toes.<\/p>\n<h3 class=\"mol-factbox-title\">WHAT IS FOP?<\/h3>\n<p class=\"mol-para-with-font\">It is estimated that FOP affects about 3,500 people worldwide, with the earliest documented cases dating back to the 17th century.<\/p>\n<p class=\"mol-para-with-font\">The condition revolves around soft connective tissue that progressively turns to bone.\u00a0\u00a0<\/p>\n<p class=\"mol-para-with-font\">This is the same process by which bone regenerates after a fracture occurs.<\/p>\n<p class=\"mol-para-with-font\">Unfortunately, FOP does not improve over time and there is no treatment.<\/p>\n<p class=\"mol-para-with-font\">Source: IFOPA<\/a>\u00a0<\/p>\n<p class=\"mol-para-with-font\">His parents refused suggestions to send him to a special-needs school because of his intelligence and sharp-wit.\u00a0<\/p>\n<p class=\"mol-para-with-font\">\n<p class=\"mol-para-with-font\">But as he grew older FOP took a tighter grip on his life, fusing his spine and neck together.<\/p>\n<p class=\"mol-para-with-font\">He developed a new way of walking with a stick and with his legs crossed to help him get by.<\/p>\n<p class=\"mol-para-with-font\">Mr Berry achieved an accountancy qualification &#8211; but sadly was unable to make the most of his qualification due to the limiting disease.<\/p>\n<p class=\"mol-para-with-font\">Despite being looked after by his parents, he moved in with his brother, his brother&#8217;s wife, Marina, and their daughter Olivia, after they both died.<\/p>\n<p class=\"mol-para-with-font\">It helped them to provide him the constant care that he needed during his final months.\u00a0<\/p>\n<p class=\"mol-para-with-font\">Mrs Berry said: &#8216;Adrian took each day as it came. He did the best that he could and he never complained &#8211; it just wasn&#8217;t in his make-up.<\/p>\n<p class=\"mol-para-with-font\">&#8216;He so looked up to Anthony and Diane (his sister) and although he didn&#8217;t have physical strength, he was emotionally robust, strong-minded and clever.<\/p>\n<p class=\"mol-para-with-font\">&#8216;In fact Adrian was tougher than us all.&#8217;\u00a0<\/p>\n<p class=\"mol-para-with-font\">\n<p>            <!-- ad: http:\/\/mads.dailymail.co.uk\/v2\/us\/health\/none\/article\/other\/inread_player.html --><\/p>\n<h3 class=\"social-links-title\">Share or comment on this article<\/h3>\n<ul class=\"bigLinks sc-icns cleared\">\n<li class=\"facebook\">\n<p>                                    <span class=\"wai\">e-mail<\/span><br \/>\n                                <\/a>\n                            <\/li>\n<li class=\"share\" id=\"shareLinkBottom\">\n<p>                                <\/a>\n                            <\/li>\n<li id=\"addCommentButton\" class=\"add-comment\">\n<p>                                <\/a>\n                            <\/li>\n<\/ul>\n<p>            <!-- NOTE: WARNING: render-partial is a function --><\/p>\n<ul class=\"rotator-panels\">\n<li class=\"new shallow-ac mini link-bogr6 linkro-wocc\">\n<p>                        <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/18\/15\/3C3E3B8200000578-0-image-a-52_1484755189685.jpg\" alt=\"\" width=\"154\" height=\"115\" \/><span class=\"wocc bdrcc\">EXCLUSIVE: Wynn Las Vegas removes all\u00a0Tom Ford beauty&#8230;<\/span><br \/>\n                    <\/a>\n                <\/li>\n<li class=\"new shallow-ac mini link-bogr6 linkro-wocc\">\n<p>                        <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/18\/19\/3C3F631300000578-0-image-a-11_1484768472246.jpg\" alt=\"\" width=\"154\" height=\"115\" \/><span class=\"wocc bdrcc\">&#8216;Justice has been served&#8217;: Obama defies storm of criticism&#8230;<\/span><br \/>\n                    <\/a>\n                <\/li>\n<li class=\"new shallow-ac mini link-bogr6 linkro-wocc\">\n<p>                        <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/18\/20\/3C3F6EF900000578-0-image-m-16_1484771114580.jpg\" alt=\"\" width=\"154\" height=\"115\" \/><span class=\"wocc bdrcc\">Obama uses his final press conference to issue extraordinary&#8230;<\/span><br \/>\n                    <\/a>\n                <\/li>\n<li class=\"new shallow-ac mini link-bogr6 linkro-wocc\">\n<p>                        <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/17\/16\/3C35E89F00000578-0-image-a-19_1484669547107.jpg\" alt=\"\" width=\"154\" height=\"115\" \/><span class=\"wocc bdrcc\">&#8216;Why would you abandon America?&#8217; Newt Gingrich says&#8230;<\/span><br \/>\n                    <\/a>\n                <\/li>\n<li class=\"new shallow-ac mini link-bogr6 linkro-wocc\">\n<p>                        <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/19\/10\/3C44FCF700000578-0-image-a-36_1484820450861.jpg\" alt=\"\" width=\"154\" height=\"115\" \/><span class=\"wocc bdrcc\">Life among the monkey hunters: The Amazon tribe that has&#8230;<\/span><br \/>\n                    <\/a>\n                <\/li>\n<li class=\"new shallow-ac mini link-bogr6 linkro-wocc\">\n<p>                        <img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/i.dailymail.co.uk\/i\/pix\/2017\/01\/19\/04\/3C432EAB00000578-0-image-a-7_1484799428004.jpg\" alt=\"\" width=\"154\" height=\"115\" \/><span class=\"wocc bdrcc\">EXCLUSIVE: A hero&#8217;s welcome! 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just 3,500 people worldwide, reports suggest He had already managed to live for more than double his predicted lifespan But the accountant contracted pneumonia and passed away on Boxing Day By Stephen Matthews For Mailonline Published: 12:03 EST, 19 January <a class=\"read-more-link\" href=\"http:\/\/healthmedicinet.com\/i\/wigan-man-turned-stiff-from-ultra-rare-condition-fop-dies\/\">Read More<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[],"tags":[],"class_list":["post-147461","post","type-post","status-publish","format-standard","hentry"],"_links":{"self":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts\/147461","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/comments?post=147461"}],"version-history":[{"count":0,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts\/147461\/revisions"}],"wp:attachment":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/media?parent=147461"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/categories?post=147461"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/tags?post=147461"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}