![\"Theo](\"https:\/\/i.dailymail.co.uk\/1s\/2019\/01\/07\/10\/8220298-0-image-a-10_1546858718201.jpg\")
<\/p>\nA baby is as ‘fragile as glass’ due to a rare condition which could leave with broken bones after just a sneeze.\u00a0\u00a0<\/p>\n
Theo Osborne’s parents have to care for their baby with ‘cotton-wool’ after discovering he had\u00a0osteogenesis imperfecta (OI) during pregnancy.<\/p>\n
In the womb, Theo had suffered from six rib fractures, a broken left collar bone, and two broken legs.<\/p>\n
The baby has already suffered from 20 broken bones in his first seven months of life, with the slightest of touch a danger.<\/p>\n
Mother, Loni Osborne, of\u00a0Skagit Valley, Washington, US, said she tries to manage her child’s pain with CBD oil.\u00a0<\/p>\n
The number of people with OI in the US is estimated to be a 20,000 to 50,000, according to the OI Foundation, and one in 15,000 in the UK, according to the Brittle Bone Society.\u00a0\u00a0<\/p>\n
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Theo Osborne is as ‘fragile as glass’ due to a rare condition called\u00a0osteogenesis imperfecta<\/p>\n
![\"Parents](\"https:\/\/i.dailymail.co.uk\/1s\/2019\/01\/07\/11\/8220314-6564827-Parents_Loni_and_Craig_Pike_Jnr_Osborne_both_20_of_Washington_US-m-1_1546860383650.jpg\")
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Parents Loni and Craig Pike Jnr Osborne, both 20, of Washington, US, were told they could abort their child, but had previously been told Ms Osborne couldn’t conceive\u00a0<\/p>\n
![\"Scans](\"https:\/\/i.dailymail.co.uk\/1s\/2019\/01\/07\/10\/8220300-0-image-a-12_1546858724058.jpg\")
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Scans revealed the diagnosis after medics were unable to measure Theo’s bones\u00a0<\/p>\n
Ms Osborne was advised to have an abortion after Theo was diagnosed with brittle bone disease 20 weeks into the pregnancy.<\/p>\n
But her and her partner Craig Pike Jnr, both 20, refused after being told he was otherwise healthy.<\/p>\n
Ms Obsborne said:\u00a0‘Our little boy is so fragile. It’s like he’s made of glass.<\/p>\n
‘Just putting him gently in his cot can cause his bones to break and fracture. We have to wrap him up in cotton wool.’<\/p>\n
We’ll save 500,000 more lives, vows NHS: Ten-year plan will…<\/span><\/p>\n <\/a><\/p>\n Lose weight, or lose your job: Pakistan International…<\/span><\/p>\n <\/a><\/p>\n ‘I went from playing football to being diagnosed with cancer…<\/span><\/p>\n <\/a><\/p>\n Super-gonorrhoea is becoming MORE resistant to common…<\/span><\/p>\n <\/a><\/p>\n<\/li>\n<\/ul>\n Theo suffered four fractures in June when he was simply put down by his parents, and broke his left tibia three times in two months by sneezing.\u00a0<\/p>\n The couple were shocked but delighted to discover they were expecting soon after their wedding in June 2017, after being told Ms Osborne would be unable to conceive.<\/p>\n At a scan in November medics said they couldn’t get accurate measurements of the baby’s limbs.<\/p>\n An obstetrician-gynaecologists asked Ms Osborne to come in for extra scans, which is when Theo was\u00a0diagnosed with osteogenesis imperfecta.<\/p>\n The genetic condition, usually caused by a lack of connective tissue and collagen.<\/p>\n It can affect the eyes, height, teeth, bones and breathing, with symptoms varied across cases.\u00a0\u00a0<\/p>\n Ms Osborne said Theo’s bones are as fragile as glass and they must ‘wrap him in cotton wool’<\/p>\n Theo\u00a0had suffered from six rib fractures, a broken left collar bone, and two broken legs while in the womb. He was born via C-section a month before his due date<\/p>\n Theo, now seven months old, can suffer fractures or broken bones from as little as a sneeze or being laid down. His parents were taught how to care for him in hospital\u00a0<\/p>\n Ms Osborne said: ‘There they confirmed the doctor’s worry – Theo had breaks in both femurs, his left tibia and his humerus on his right arm.<\/p>\n ‘Both legs were severely bowed and his rib cage was measuring small.<\/p>\n ‘We were brought into a room with a genetic counsellor, sat down and asked what we already knew about Theo’s disease.<\/p>\n ‘We were never warned and we had no clue.\u00a0<\/p>\n ‘My heart shattered in my chest when she dropped the diagnosis that would change our lives.<\/p>\n ‘They told us with his chest being small he wouldn’t live and our best option was to terminate.<\/p>\n ‘After hearing this, I had two questions – “Does his brain work? Are his organs functioning?” Both questions were answered with a yes so we decided that Theo gets to decide.<\/p>\n ‘We would give Theo a chance to prove these doctors wrong.’<\/p>\n Doctors planned to deliver Theo at 37 weeks, but Ms Osborne’s waters broke nearly a month early on March 25 and she was rushed for an emergency C-section.<\/p>\n Doctors told Ms Osborne the worst case scenario would be that Theo wouldn’t be able to breath and that his life would be short.\u00a0\u00a0\u00a0\u00a0<\/p>\n After seven days in NICU, he was transferred to Seattle Children’s hospital for more than two weeks, where is parents learned how to care for him as safely as possible.\u00a0<\/p>\n Doctors told Ms Osborne the worst case scenario after the birth, via C-section, would be that Theo wouldn’t be able to breath and that his life would be short\u00a0<\/p>\n ‘I was taking care of a child made of glass – that’s what it often felt like,’ said Ms Osborne.<\/p>\n ‘The NICU was a dark time it was scary and hard and frustrating. But it was all worth it.’<\/p>\n The pair were able to take their son home on April 18 – two days before Theo’s original due date.\u00a0<\/p>\n Only five people are able to hold Theo in a special way, which involves spreading the fingers wide so there is no pressure on any one spot.<\/p>\n Ms Osborne said: ‘We can pick Theo up and cuddle him, but not like you would a normal child. We cant use force. We can’t pull on any limbs, or apply any pressure.\u00a0<\/p>\n ‘Theo has a very high pain tolerance and we try to stay away from opioids and pain killers when we can,’ said Ms Osborne.<\/p>\n ‘We mange pain mostly with CBD oils.<\/p>\n ‘Whether Theo will ever walk is unknown, but we do physical therapy, occupational therapy, eating therapy, he sees orthopaedics and we do early intervention.’<\/p>\n Because there is such a large spectrum of OI, and no two cases are alike, little is known about how Theo will grow and deal with therapy.<\/p>\n Ms Osborne said:\u00a0‘We spend a lot of times in doctors’ offices but we do everything we need to do for Theo.\u00a0<\/p>\n ‘Our journey has just began but we are determined to give Theo the world. All we want for him is a good normal life.\u00a0<\/p>\n ‘Theo’s braver than any child I have ever met being nine months old and having 23 breaks, he smiles and laughs like he’s never felt pain. He knows he’s loved. He knows he’s safe.’\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":" A baby is as ‘fragile as glass’ due to a rare condition which could leave with broken bones after just a sneeze.\u00a0\u00a0 Theo Osborne’s parents have to care for their baby with ‘cotton-wool’ after discovering he had\u00a0osteogenesis imperfecta (OI) during pregnancy. In the womb, Theo had suffered from six rib fractures, a broken left collar Read More<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[],"tags":[],"class_list":["post-233680","post","type-post","status-publish","format-standard","hentry"],"_links":{"self":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts\/233680","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/comments?post=233680"}],"version-history":[{"count":0,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/posts\/233680\/revisions"}],"wp:attachment":[{"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/media?parent=233680"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/categories?post=233680"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/healthmedicinet.com\/i\/wp-json\/wp\/v2\/tags?post=233680"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}![\"Ms](\"https:\/\/i.dailymail.co.uk\/1s\/2019\/01\/07\/11\/8220302-6564827-Ms_Osborne_said_Theo_s_bones_are_as_fragile_as_glass_and_they_mu-m-2_1546860391265.jpg\")
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