Receiving specialized care in a timely manner plays a significant role in the progression and impact of epilepsy on someone’s life. Multiple organizations across the global epilepsy community have collaborated on “My Seizure, Know More†a web-based tool that empowers people with epilepsy and their families to seek specialized care.
Following the release of the Institute of Medicine Report: Epilepsy across the Spectrum—Promoting Health and Understanding (2012), representatives of Vision 20/20, a collaborative effort of epilepsy organizations, began working on a web-based tool to help individuals with epilepsy, their families, and caregivers determine their need for specialized epilepsy care. The tool, found at www.MySeizuresKnowMore.com, is made up of 6 simple questions that are essential to epilepsy diagnosis and management. The tool provides information and resources related to seizure control, psychological, social, and behavioral concerns and other comorbidities that can impact health and quality of life. “My Seizure, Know More†allows individuals to print or email a report with their responses and encourages them to share it with their current health care providers to determine if a change in their treatment plan is needed or if a referral to an epilepsy specialist or center would be beneficial.