An Open Letter To Trump From A 9-Month-Old With Eagle-Barrett Syndrome

I have a really rare syndrome called Eagle’s Barrett. It affects like 1 in 40,000 kids and I just happen to be one of them. You see, Mr. President Trump, I don’t have any stomach muscles. And there’s a long list of stuff that goes with this syndrome referred to as prune belly because my stomach is shriveled up like a prune. Actually, you can see my liver protruding from my tummy and I have chronic kidney disease and a whole long list of other stuff. I’m really lucky ’cuz a lot of kids with what I have don’t live and 20 percent succumb to the disease before the age of two. But Nana and Uncle Anthony say I’m blessed and everyone has challenges in life, so I’m not different, I’m special like everyone.