Baby battles back after being born with rare condition Currariano Triad

October 4, 2016

Raymond Dean is one of the few people to be born with Currariano Triad
The tiny tot’s condition means that he has a deformed rectum and tailbone
Parents Billie and James watched on as Raymond was rushed to hospital
However doctors at Great Ormond Street in London were left flummoxed

Alexander Robertson For Mailonline

Published:
08:55 EST, 2 October 2016

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Updated:
02:29 EST, 3 October 2016

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A baby boy was born with a medical condition so rare that stunned doctors at London’s top Great Ormond Street Hospital had never seen it before.

Tiny Raymond Dean is one of the few people anywhere in the world to have been born with Currariano Triad – which is almost unheard of.

The tot was born with a deformed rectum that stopped him defecating, an abscess on his perinaeum and severe problems with his tailbone.

Seven-month-old Raymond Dean, who has a rare stomach condition called currariano triad, with his parents Billie and James

The tot was born with a deformed rectum that stopped him defecating, an abscess on his perinaeum and severe problems with his tailbone

The one in a million turn of events left Raymond’s parents, Billie and James Dean, shell-shocked as their first child had to fight for his life.

But seven months on Mrs Dean said their pride and joy little boy is ‘thriving’ – despite the everyday challenge of having to live with a colostomy bag.

Doctors have improved Raymond’s damaged rectum and that’s given the family hope he will be able to go to the toilet normally as gets is older.

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‘Raymond has become such a cheeky, smiley baby and we think the world of him,’ said Billie, of Norwich.

‘He loves going out with us and he sleeps so well at night.’

Recalling the day he came along, first-time mother Billie, a nurse, said she knew straight away that something was badly wrong.

The one in a million turn of events left Raymond’s parents, Billie and James Dean, shell-shocked as their first child had to fight for his life

Doctors have improved Raymond’s damaged rectum and that’s given the family hope he will be able to go to the toilet normally as gets is older

Raymond had been born with his hands first, his fierce screams were too high-pitched and shrill and he wouldn’t latch on to Mrs Dean’s breast.

Nurses, doctors, consultants, and surgeons dashed to the delivery room at Norfolk and Norwich Hospital as Billie and James looked on shocked.

The situation quickly became serious. And within the first hour of his life Raymond was whisked away to the neo-natal intensive care unit after being allowed a brief cuddle with his parents.

Eight hours later the embattled infant was put in an ambulance and swept off on the 100-mile trip to Great Ormond Street Hospital.

Medics at London’s world-renowned hospital said they had never seen a condition like it.

It was a life-threatening condition for Raymond who spent the next week undergoing major surgery and treatment.

For childhood sweethearts Billie and James, who stayed night and day close by the hospital to support their ailing son, it was not the start to parenthood they had imagined

For childhood sweethearts Billie and James, who stayed night and day close by the hospital to support their ailing son, it was not the start to parenthood they had imagined.

‘It was terrifying and really difficult,’ said Mrs Dean. ‘I don’t think we slept for 48 hours straight through after Raymond was born.

‘In London we were getting naps but I kept expressing milk which we would run over to the hospital.’

Raymond has to live with a colostomy bag and the family are eager to get in touch with other people whose children suffer bladder or bowel disorders.

‘We’d love to hear from other people who have a young child with a

similar problem,’ said Billie. ‘It would be great to set up some kind of support group.

‘I have already spoken to a few other mothers on Facebook about it.’