This Life: Cancer Survivors Celebrate Their Cancerversary


He chuckled. “You’ve been here before.”

“Yes,” I said. “Today are my five-year scans.”

“You’re a frequent flier!” he said. “Good luck.”

I lay on the bench and slowly slid into the doughnut-shaped machine. As I did, I noticed the ceiling. It was painted with a scene of sunlight peeking through some leafy branches.

For all the cruel randomness and vagaries of cancer, the disease, as a brand, is extremely consistent. There are the recognizable symbols: the bald head, the yellow wristband, the pink ribbon. There are the well-known treatments: chemotherapy, radiation. There are the familiar expressions: Stage IV, metastases, remission, cure. But of all these elements, perhaps none is more enduring than the metric of the five-year survival rate.

When I first learned that I had aggressive bone cancer in my left leg in 2008, I did what many patients do: I immediately searched out the five-year survival figures. I then did the grim calculation of how old my children would be at that time and whether I would outlive my parents. Over a brutal year of chemo, surgery and rehabilitation, I kept an indelible ticking clock in my head. Sometimes I wondered, “Why won’t the clock speed up?” Other times, “Why won’t it slow down?”

And as I slogged through subsequent years of scans — first every three months, then every four, then every six — and experienced what survivors call “scanxiety,” I imagined what the five-year benchmark would feel like. Like an actor practicing my Oscar acceptance speech, I even rehearsed exactly what I would do: break down in tears, give a party, buy plane tickets to Hawaii.

And yet, as I approached the milestone in recent weeks, I began to feel more ambivalence. What happened? Or, had I been wrong all along?

The concept of the five-year survival rate for cancer was introduced in the 1930s. Initially, the designation was used for blood cancers, which grow fast and were extremely lethal at the time, said Dr. Siddhartha Mukherjee, a cancer specialist at Columbia University Medical Center and the author of “The Emperor of All Maladies,” which won a Pulitzer Prize. For those patients, reaching five years was considered something of a miracle. “The idea was you could define a time point where it would make sense to think about that cancer as being cured,” Dr. Mukherjee said. “From there it crept backward into all cancers.”

By the 1950s, five-year survival figures were becoming standard, and by the early 1970s the National Cancer Institute began releasing regular statistics for most forms of the disease. In the face of such authoritative endorsement, the public accepted these figures as meaningful.

But from the very beginning, many scientists were uneasy with grouping all forms of cancer under one metric of survival. “Five years is quite an arbitrary number,” said Julia Rowland, the director of the National Cancer Institute Office of Cancer Survivorship. “For some cancers, if you haven’t had a recurrence in two years, your rate of recurrence drops considerably. For others, like breast cancer, you can have a recurrence at any time.”

For these reasons (and more), Dr. Mukherjee called the five-year figures a “vestige of the past” and predicted that in the near future they would be replaced with more individualized benchmarks. “Just as it makes sense to personalize cancer therapy, it also makes sense to personalize what survival means to an individual patient,” he said. Until then, he considers the five-year survival figure an “instrument of convenience.” In his book he tells the moving story of delivering flowers to a patient when she reached the date. “I was responding to the iconography,” he said. “We mark birthdays, and if you’re a cancer physician you mark survival days.”

Patients, too, mark survival days. Almost everyone I know who’s been told they have the disease can tell you the date. But how to recognize that “cancerversary,” especially the five-year one, is a source of surprising unease. In conversations with nearly two dozen survivors, I found patients divided almost evenly between those who view their five-year “cancerversary” as a joyous occasion and celebrate with gusto, and those who view it as a more solemn day and acknowledge it with quiet gratitude and continued vigilance.

Bruce Feiler’s memoir of his cancer experience is called “The Council of Dads: A Story of Family, Friendship Learning How to Live.” “This Life” appears monthly.